Archive for January, 2019

Guiding the sick through the system …

kv

My friend Karen Vogel just published a piece called “The Accidental Advocate.” It starts:

Like many patient advocates, personal experience transformed me into a new career. I was prepared and motivated. I had a professional network and confidence that I was smart enough to figure it out as I went along. What I didn’t include in my business plan was ironic shock.

One of my champions was my neighbor Laura, who lived next to me for 20 years. For a while she listened to me whining about my work in health insurance management, my aging parents, the screwed up healthcare system . . . and challenged me to stop complaining and take action. And so I did. The main impetus was my mother’s death. It forced me to become a long distance caregiver for my father, which turned out to be a wonderful adventure for both of us. I quit my soul-sucking corporate job, went back to school and retrained. I started my own company 3 years ago and worried about finding clients. “No problem,” said Laura, “my aunt Jane is sick and needs someone to figure out her insurance.” Client #1.

Four months into my new occupation, on a Friday evening in April 2016, I got a call that Laura was in an emergency room. She had been struggling with memory issues and a coworker dragged her to the hospital under protest. I rushed over yelling “I’m an advocate! Let me document everything!”

Laura had glioblastoma multiforme (GBM) Grade 4, the worst kind of brain cancer, usually terminal within 18 months. On Sunday morning a surgical team was in place to make sure she got a lemon-sized mass removed from her head. Laura became client #7. …

Read the entire thing.

Here is an interview Karen did last year with Vice News on HBO.

What happens to your social media accounts when you pass away?

This piece is tangentially related, in a way, to my December 30 post below.