Archive for work-life
Guiding the sick through the system …
My friend Karen Vogel just published a piece called “The Accidental Advocate.” It starts:
Like many patient advocates, personal experience transformed me into a new career. I was prepared and motivated. I had a professional network and confidence that I was smart enough to figure it out as I went along. What I didn’t include in my business plan was ironic shock.
One of my champions was my neighbor Laura, who lived next to me for 20 years. For a while she listened to me whining about my work in health insurance management, my aging parents, the screwed up healthcare system . . . and challenged me to stop complaining and take action. And so I did. The main impetus was my mother’s death. It forced me to become a long distance caregiver for my father, which turned out to be a wonderful adventure for both of us. I quit my soul-sucking corporate job, went back to school and retrained. I started my own company 3 years ago and worried about finding clients. “No problem,” said Laura, “my aunt Jane is sick and needs someone to figure out her insurance.” Client #1.
Four months into my new occupation, on a Friday evening in April 2016, I got a call that Laura was in an emergency room. She had been struggling with memory issues and a coworker dragged her to the hospital under protest. I rushed over yelling “I’m an advocate! Let me document everything!”
Laura had glioblastoma multiforme (GBM) Grade 4, the worst kind of brain cancer, usually terminal within 18 months. On Sunday morning a surgical team was in place to make sure she got a lemon-sized mass removed from her head. Laura became client #7. …
Read the entire thing.
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Here is an interview Karen did last year with Vice News on HBO.
“patient advocate”
On my way out the door after my first appointment with my new doctor up in Vancouver – this would be in 1996 – a clerk at the front desk noticed that I seemed puzzled. “Mr. Basil, in Canada, doctors offices don’t have cashiers.” I heaved a brief sob, I was so relieved and surprised.
When I lived in the United States, my insurance was sporadic and when I had it often shitty. That fact touched every one of my days with real and awful anxiety.
Vice.com says my dear friend Karen Vogel is at the vanguard of a new profession in the United States – the “patient advocate”:
Karen Vogel, an insurance and administrative advocate, spent 29 years working in the insurance industry and became frustrated at the missed opportunities to really make a difference in patients’ lives.
“It was hard to come to terms with what was I doing and was I creating any good in the world, and who was I really serving?” Vogel told VICE News. “Because our healthcare system is so fragmented it’s so broken and there are so many opportunities to get into it to make it work for people. And I just wasn’t satisfied with the path that I was on.”
Over the past two and a half years of working as a patient advocate, Vogel has helped her 45 clients wade into the specifics of the insurance claim and reimbursement process.
About a quarter of what she finds are simple errors; the rest of her work is advocating on behalf of patients for out-of-network coverage or special considerations. Her biggest save was $109,000 by appealing out of state care to count toward in-state benefits.
I am very proud of my friend, who’s on the side of the angels.
More on Solidarity
From the wonderfully amazing Clarissa:
Look at the teacher strike in West Virginia. Isn’t it a wonderful, inspiring thing? The teachers refused to be further mistreated and abused. They organized, stuck together, and achieved a victory.
If you have ever done any organizing, you know that it’s not about making a logical argument, showing the numbers, and proving points. What’s a lot more important are human relationships, emotions, trust, feeling comfortable with people in your unit.
It’s a lot harder to organize in an environment of mistrust, suspicion, and mutual dislike between workers. Any collective action requires an enormous amount of trust between participants because getting atomized, alienated consumers to do any collective action at all is ridiculously hard.
The vision of self as an island that is better off outside of any collective process is formed slowly and by means we don’t even notice. Those people who tell me, “I don’t need a union. I can negotiate on my own behalf” or “and how do I know you won’t tell the dean what we’ve been talking about here?” are guided towards this vision of self and others. There’s a million strategies to make workers fear and avoid each other.
All of these microaggressions seminars, ethics trainings, gender parity tutorials – their whole point is to make workers detest each other. We tell ourselves they have no effect on us but that’s delusional and well in line with thinking that an exceptional individual can bootstrap themselves out of ideological and intellectual processes that everybody is subject to.
It does have an effect. All of these exhortations to suspect and fear our fellow worker have an effect. Nobody is an exceptional cookie that can rise above this. This is poisoning the workplace for all of us. This is what we need to resist.
Unless we have a clear vision of all the anti-labor strategies employed against us, we won’t win.
Lorraine Marshall
My old friend Lorraine passed away in her sleep yesterday. We worked together closely in the late ’80s and early ’90s, at Prometheus Books, where she was the Marketing Director. She was very funny (and very thoughtful); she was lovely.
Her Facebook page had this Lou Reed quote on it: “There’s a bit of magic in everything, and then some loss to even things out.”
